It's been a while since my last post so I thought I'd try to be a little more active on this blog.
The treatments I received in Jan/Feb at the U of M Hospital had mixed results. Some of the spots shrank and others grew a little. Since then I've started taking a chemo type of targeted drug. It's a pill that is taken for a 28 day cycle followed by a 14 day cycle with no pills. This cycle is repeated over and over if it is working. So far I've been through two rounds of taking the pills and enjoying the wonderful side effects. A couple of weeks ago I had more scans to check out whether the drugs are doing anything or not. The doctor said that some of the spots had shrunk significantly and it didn't look like there were any that had grown. Good news.
Now I just continue to take this treatment and have regular check ups and scans. I also have to check my blood pressure daily and have an EKG scheduled in a few weeks to see if there are any heart related side effects. The other side effects change with each round of pill taking too. I get severe heartburn. My mouth and tongue feel like they are burned and certain foods are painful to eat or drink. My palms get tender along with the bottom of my feet. Some foods that normally taste good don't taste good anymore.
Overall, I feel pretty good. I try not to whine too much and don't want sympathy. I just want people to understand a little about what's going on. I'm not done yet. I also refuse to go quietly.
